Monday, December 27, 2004

A Rather Rambling Introduction From a Newbie

You know, sometimes I just need a break. I know that can be very difficult for parents of "normal" children to understand. I mean you're supposed to love and care for your children with all your heart and soul...24/7...right? Yes. Still there are times I just get really tired and I need a break. That is the reasoning behind the residential respite program here at our local MHMR center. The local mental health clinic. It is a 24/7, nurse on site, professionally staffed residential unit for special needs children. A place for caregivers/parents to take their precious babies, when they just need a break. Like me, like now...this week. A few days to myself to really sleep. Sleep through the night. Ah! I thank God for these services and especially since its covered by Medicaid...its of no cost to me. My precious princess is already familiar with the staff and the facility. She is a favorite! A coupla summers back I was in hospital with heart surgery for several weeks, she stayed there then. So they all know her really well. It was during that time she truly 'blossomed'. Before she went in she didn't speak much at all and I was told it wasn't likely but being there under those circumstances she was forced to speak to get her needs met. There was no doting mommie catering to her every whim. I know, my bad, but what did I know then of autism? Nothing not in comparsion to now a few years later. So we've utilized the respite program since then for much less intensive stays. A few days now and again, so Mommie can get some rest. Princess, that's my pet name for her online, is 6 year old. She is very intelligent. She is very loving. She is a ball of boundless energy. She is my one true love. Now she can communicate fairly well. She goes to a regular school, although she's been held back to kindergarten, not first grade. This is not due to her not being capable of the work, she reads at a 3rd grade level, its more to do with socialization. Her major areas of ...er..concern...communication and social interaction. Most people do not even realize she is 'special' until after they've talked with her for several minutes. She is so beautiful. She is my love. Okay, I'll stop gushing. Its just the two of us and I've no real support system anymore..no family, few friends, so the respite program is my saving grace. Especially during school breaks. She is rather habituated to her school schedule so when she's off..our schedules get wrecked. Mommie doesn't get much sleep. Then there are the night terrors too. Sorry, its been a long day I hope at least some of this has made sense.
I thought this might make for a kinda introduction to my fellow 'blog sisters'. I hope to get caught up on this blog, its an interesting concept.
Season's Greetings and Howdy from Texas!
Cyn

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