Wednesday, January 22, 2003

my story about off label use of ru-486

i posted this in my blog too:

okay, here's the story. the drug mifepristone, more commonly known as ru-486,, even more commonly known as the abortion drug, is now being shown to work in treating a variety of diseases, two of which are severe and psychotic depression. i suffer from severe depression.

last week i went in to my doctor. the bad news she gave me was that there wasn't much else she could do for me. i had recently read in ms. that there was a study being done at standford, but also that doctors might be able to get a hold of the drug through the feminist majority foundation. i mentioned this to my doctor and brought in a copy of the article, hoping that we could get a hold of the drug for me.

a week later. she tells me we can't get a hold of the drug. she didn't call the fmf but she talked to some of her friends-- my doctor is a pro-choice activist-- and they told her that the drug was so highly regulated that you had to call the company to get a hold of it for any off label use, and with a study going on for depression there was no way she was going to be able to get it for me. (can't do a study, to high a risk of me getting a placebo and that is way bad news.)

see, with any other fda approved drug and off label use there's no problem. doctors do it all the time. in fact i'm sure the vast majority of you have gotten a drug from your doctor and used it for a reason not under the original reason approved by the fda. but because this drug was approved as the abortion drug all the right wingers have decided to fuck with it and not let free use of it. so those people like me who could benefit from it have to suffer because of morality not chosen by us.

i've written a note to my doctor telling her that if the group she works with in her activism wants to use me as a face and a name in their materials to help get the government to lay off ru-486 they'd be more than welcome. and i'll be calling my senators, that pissant gordon smith, and ron wyden, and my house dude- peter defazio, and maybe even trying to speak with them personally. i want all of them to put a name to what this government has done. and luckily i'm a person that they like. white, middle class, and educated (i'll leave out the lesbian part). i'm even gonna find out the name of the manufacturer of ru-486 and call the president.

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